Andrei Tallent just sent BRIGHT this description of a new foundation he is working with. The foundation is focused on Cortical Vision Impairment. Please take a moment to check out the website and learn more about this very common issue with children who have suffered a brain injury and cerebral palsy.
Cortical visual impairment (CVI) is the leading cause of visual impairment in developed countries today. In fact, it has been suggested that as many as 80% of those with cerebral palsy also have CVI. Though this is true, an appallingly few number of doctors and therapists know much about it. Many children who have CVI go undiagnosed or misdiagnosed as result. Parents are too often told there is nothing they can do to help their child learn to see. The reality is that CVI very often can and does improve, but only with focused and appropriate intervention.
We created our organization, Little Bear Sees, in 2011 in order to raise awareness about CVI among as many people as possible. Our first step was to create a website (www.LittleBearSees.org) which outlines exactly what CVI is and what you can do about it. In addition to our website , we have also created an iPad and iPhone app specifically for children with CVI (Tap-n-See Zoo) and have just released the first book about CVI written for parents by parents (Little Bear Sees: How Children with Cortical Visual Impairment Can Learn to See).
Every time we hear of a child with CVI who went undiagnosed for years, or meet a medical professional who knows nothing about CVI, we feel even more determined to raise awareness about this condition. In our experience, it is often you, the parents or caregivers, who fill the gap and become experts in CVI and advocates for your children. We hope that the information we provide will help you to do this.