Department of Developmental Services (DDS)
DDS disability grants are available to cerebral palsy patients who are also mentally challenged. The dollar amount of the grants typically ranges from $600 to $1,000 a year, with a yearly maximum of $5,000. The grant money can be used for home needs, such as equipping a van with a wheelchair ramp.
The DDS also runs several smaller projects to support families with kids suffering from cerebral palsy. These include the Family Support Grants Program (grants of up to $250 a month to help meet the extraordinary expenses a family incurs in caring for a child with a developmental disability other than mental retardation), Birth-to-Three Program (serves children up to age three) and the Individual and Family Supports Medicaid waiver program (covers family training, home and vehicle modifications, specialized equipment and supplies, transportation, respite care, and nutritional consultations for eligible families).
Medicare
Medicare is a federal health care benefit program that under certain circumstances can provide medical assistance to those with qualifying disabilities.
Medicaid
Medicaid is a federally funded, state run program providing medical assistance to low-income individuals and families. Each state manages its own Medicaid program through determination of specific eligibility factors, standards and services. Eligibility requirements and restrictions, as well as the scope of Medicaid-funded services, vary from state to state. Generally, most programs help pay for doctor visits, dental work, vision care, immunizations, hospitalizations, special health care needs, screenings, treatment, and emergencies. Although income level is a primary qualification, other qualifying factors may include age, citizenship, family status, and the existence of certain other medical conditions. Services available for children with cerebral palsy may include Medicaid’s Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) program, which ensure comprehensive coverage for children. EPSDT provides access to evaluations, required treatment, and medical care to eligible children with special health care needs.
Some popular programs, which run under Medicaid, include HUSKY A & B
This is a Medicaid managed care plan that provides extensive federally mandated benefits. For children with chronic disorders like cerebral palsy, support includes 100% payment for durable medical equipment; short-term physical, speech, and occupational therapy; and home health care (some benefits require prior authorization).
Children’s Health Insurance Plan (CHIP)
This program is a low-cost health insurance option for uninsured children whose working parents have a combined income too high to qualify for Medicaid, but too low to afford private insurance. By providing access to high quality healthcare and medical services, this combined federal and state program helps many children with special health care needs reach their full potential.
http://www.healthcare.gov/using-insurance/low-cost-care/childrens-insurance-program/
The Temporary Assistance for Needy Families (TANF) program
The U.S. Office of Family Assistance offers this program. The program provides cash assistance for basic needs to eligible families with dependent children. The funding provided may help pay for groceries, clothing, electricity, heating and cooling, necessary equipment, and certain medical necessities that Medicaid does not cover. Since each state oversees its own TANF initiative, the program’s name, eligibility requirements, and type of assistance varies state-by-state.
http://www.acf.hhs.gov/programs/ofa/programs/tanf/about
Children with Special Health Care Needs (CSHCN) services program
CSHCN is a federally and State funded Title V Maternal-Child Health Bureau program offered through Public Health Department. The Public Health Department uses federal Maternal and Child Health Services Block Grant (Title V) funds to run this program.
http://www.cdph.ca.gov/Pages/DEFAULT.aspx
Supplementary Security Income (SSI)
This is a large Federal benefit program providing cash to eligible low-income children and adults who are disabled (cerebral palsy children qualify automatically). The project is managed under the Social Security Administration.
Those who qualify for SSI also qualify for other types of help from local and state government-funded programs, like Medicaid or Medicare, weatherization programs, Temporary Assistance for Needy Families (TANF), and food stamps. Social Security representatives at local Social Security offices help determine eligibility for applicants.
http://www.socialsecurity.gov/
The Low Income Home Energy Assistance Program (LIHEAP) and the Weatherization Assistance Program (WAP)
These federal government funded programs, delivered by the state governments, provide assistance for children with cerebral palsy, and or including deserving families.
The Special Supplemental Nutrition Program for Women, Infants, and Children (WIC)
This program provides Federal grants to States for supplemental foods, health care referrals, and nutrition education for low-income pregnant, breastfeeding, and non-breastfeeding postpartum women, and to infants and children up to age five who are found to be at nutritional risk.
Traumatic Brain Injury Program(TBI)
This is a federally funded program, which helps State, and local agencies develop resources so that all individuals with TBI and their families will have accessible, available, acceptable, and appropriate services and supports.
dear sir/mam,
I want to know that is any help has been provided for the children suffering from cerebral palsy as my elder brother is suffering from this.would you please help me and my family in this context.
My child has cerebal palsy Im in need of a Home Health aide who can assist with his care for a couple of hours until I get off work I have no help or resources he receives medicaid CMS will they cover this care.Can someone assist me.
I am taking care of my son who have cerebral palsy . He is 38 yrs old and I would like to know what resources are available for him . I find a lot of grants and resources for children , but nothing for adults . Can you help me ?
Deborah
I am a single mother with only one income. I’m in need of some help purchasing a Van for my daughter with CP. I have tried to get funding threw Facebook from friends and family but haven’t put a dent in the amount I need. I need to know where do I start to get grants or funding for this?
Cerissa Stovall
need some help with building a ramp for member
Why aren’t there more website and resources for adults with cerebral palsy?
Good morning! I am writing to inquire and get informations where I can ask for help for my niece who has cerebral palsy. I am looking for help to be able to obtain a used mobility support for her particularly a kidwalk. She is 18 years old and resides in the Philippines. Any informations you can provide would be great. Thank you very much.
Please advise if you have a program avaialbe for adults with Cerebral palsy. Its very hard to find doctor that will treat adults in the Dallas area. My daughter is now 29 and her condition is worsening and I can’t find anyone to treat her.
Please review and advised
Lori A Johnson/ Mom
972-571-8917 ( cell)
I need a resource for a handicap accessibl van for my client. He is 5 and needs to have a way to get to medical appointments. He lives in a remote Alaskan village
Seeking funding to assist a mid fifties gentleman with Cerebral Palsy to move to where his family live in Seaford DE. Mr. Davis lives in Manchester, NH, 470 miles north of where he would like to move. Can your agency help with an allotment to help? We’ve tried numerous ways to raise money needed but at a standstill. I read that your agency sometimes helps with up to $5,000 per year? Dean Davis is in need of roughly $3,000 to move. Most agencies I see online help with children’s needs and we are having trouble finding adult need agencies. Please read the letter I’ve prepared below, and thank you.
I have a request but unsure if your agency assists CP adults with needs? I see all the great work you’ve done helping so many. Could you tell me, where to turn for guidance and/or help for a mid fifties gentleman who has tried to raise funds [ to no avail ] to enable him to move his family home?
I’ll encapsulate the situation for you here. Dean Davis has been in a wheelchair since birth, started in leg braces, moved to crutches, surgeries to separate his legs which were intertwined, spent much of his childhood and teen years at a wonderful rehabilitation center in NH called Crotched Mountain where he earned his diploma and moved out into society at about age 20. He met and married a man “Bob” with whom he has shared his life with for 35 years. Dean has a service dog which was trained and cost roughly $20,000 [ money was generated through fundraisers ] which is his “right hand” and life blood. I met Dean through the agency I work for, Granite State Independent Living, which is similar to Easter Seals Foundation in structure.
It was through my caregiving position that I interviewed to work for Dean and found him warm, personable, bright and funny. A person who was not a victim but someone who has a drive to consistently pull himself up and not sit stagnant in any situation. One day when I asked him what his dream was, he stated to move home where his mother and siblings reside in Seaford, DE [ 470 miles south of his residence here in Manchester, NH ]. He went on to say he’s been trying to move home for 5+ years now but cannot afford the move. You see, he and Bob are on a fixed SSI income which totals $1,272 per month, plus $52.00 in food stamps. It is not possible to put away even $10 per month as many months they barely meet their financial obligations. It is a very sad situation. I learned this about 6 months ago, and we had a lengthy conversation, and many since, on this subject. I thought, why can’t anyone in his circle [ personal and professional ] help him in raising funds to simply get home? As I dug deeper I discovered his mother is nearing 80 and although he hasn’t stated it, I sense a man who immensely misses family but also a sort of guilt in Dean that he missed so many years without his mother while he moved away to Crotched Mountain [ where he felt they were best able to care for his grave needs as a youngster ]. The decision by the way was Dean’s, which must have been very difficult at 7 years old. Imagine having brothers and sisters running out the door to play and you sit in a wheelchair watching but unable to run with them? Instead, Dean was faced with staying in a home where he felt his mother, while loving Dean, did not hold the knowledge or skills to care for this young child [ back then we didn’t have the classes and technology we do today ] and his special needs, or moving 500 miles away to a place he knew nobody yet had a chance to be with others unable to “run outdoors and play” – so to speak.
So to fast forward, I entered the picture a year ago and in that time, have tried in vain to help Dean and his family make this trip/move possible. I began by setting up a GoFundMe online campaign, placing flyers I made up and copied into places of business, placed an ad in a local newspaper, The NH Union Leader, drew up a flyer and paid for the paper to use it as an insert on brightly colored paper so it stood out, set up a radio broadcast campaign and showed Dean how to contact radio stations via email to ask for publicity to raise funds for his move, and various other ideas. Total dollars raised so far, $50.00 through GoFundMe and $10.00 through the newspaper insert. So a total of $60.00 for a $3,000 – $6,000 move, very discouraging. I’ve quickly learned that my background in the law field never covered marketing skills!
I write to you today in hopes you have some guidance, advice, or ideas of how to further Dean’s dream of getting home to Seaford, DE. Dean will oftentimes say to me, Ava I’m getting so discouraged in that something may happen to my mother before I’m able to move to DE to be with her [ as he tears up ]. I don’t honestly know what to do anymore, where to turn, who to ask for help. Please, could you give me any opinion on how to proceed from here, if its not with your agency?
Thank you in advance.
I am a 48 year old woman with CP. I have been able to work at least part time most of my adult life. I am able to live semi independently. My issue is now that I need emergency assistance to pay rent and help Throughout the SSDI process I had it 17 years ago and used it as a hand up but now work is getting very difficult and I face homelessness in a very few months if I do not find some help or other means of income. I am working with DHS for caregiving services and get meals on wheels. I work a little for an answering service but things are starting to not make sense I feel as if I may be working myself to death literally. I am also applying for HUD and other services… OVR is trying to put me in touch with people who might help but really is there anything else that can be done. This seems somehow tragic that I did not draw on benefits for 17 years and and now when I truly need assistance I should just drop dead at the desk? Please please help…I do not understand. Thank you. Nona
I am seeking assistance for a vehicle adaptation for a 51 year old woman with cerebral palsy and severe mental challenges and TBI. She has been cared for all her life by her parents who are now in their 70’s. They are on the verge of no longer being able to care for her without some assistance. The first of which would be an adapted vehicle so that they no longer have to lift her to put her in a car seat.
I would appreciate information on how to find a grant for which to apply or about possible assistance in Pima County, Arizona.
Thank you
I have cerebral palsy.. I’m 39 and I need help
Hi this is Julie I am looking for help with funding to get Michael some eyeglasses we live in oak lawn il I am taking him to the eye dr we just need help with funding for his eyeglasses thank you Julie
I need some help for my cousin Evie, she lives in Baltimore MD. with her 85 year old Dad Albert. They need HELP Really REALLY REALLY needs help with a Stair Lift. Can you please contact me via EMAIL at
mielkelisa @hotmail.com
I will need your aid pls, I have a 2 years old daughter and she is a cerebral palsy patient.
Looking for information for a dear friend whose daughter with cerebral palsy needs a new wheel chair. It has been six years and Danielle will be 21 on December 11th. Danielle has Medicare and Medicaid. Her mother, Nancy needs help. Please send information on this. Thank you.
Hi, I am 29 and I have mild CP. I receive SSI. Unfortunately, due to my husband and his job, they are taking it away soon due to my husband’s job. I don’t know what all I can get grants for and I’m just curious